ThePalinuro Association is much more than a volunteer organization: it is a living community, founded by patients for patients, which strives every day to give voice, dignity and concrete support to those fighting urological oncological diseases, especially bladder cancer.
Founded by people who have experienced the disease firsthand, the association aims to be a human, informative and practical reference point to face the diagnostic, therapeutic and post-therapeutic path with greater awareness and strength.
Founded by people who have experienced the disease firsthand, the association aims to be a human, informative and practical reference point to face the diagnostic, therapeutic and post-therapeutic path with greater awareness and strength.
What the Palinuro Association does
Information and Awareness
The association provides patients with an extensive collection of information materials, produced in collaboration with physicians and specialists, to better understand diagnoses, treatment options and recommended lifestyles.
Self-Help Groups
Palinuro has activated dedicated WhatsApp Groups, moderated by experienced patient volunteers, where people can confront each other, receive emotional support and share experiences. The power of sharing is often the first step toward resilience.
Health Orientation
Through a network of contacts with hospitals, cancer centers and qualified professionals, the association provides guidance on excellent facilities for the treatment of urological diseases, accompanying patients in making the most suitable choice.
Protecting Rights
Palinuro actively participates in institutional and healthcare tables to advocate for patients' rights, promote research, access to care, prevention and early diagnosis.
Events, Conferences and Assemblies
Periodically, informative events, medical-scientific conferences and get-togethers are organized to strengthen the network among patients, physicians and family members.
The association provides patients with an extensive collection of information materials, produced in collaboration with physicians and specialists, to better understand diagnoses, treatment options and recommended lifestyles.
Self-Help Groups
Palinuro has activated dedicated WhatsApp Groups, moderated by experienced patient volunteers, where people can confront each other, receive emotional support and share experiences. The power of sharing is often the first step toward resilience.
Health Orientation
Through a network of contacts with hospitals, cancer centers and qualified professionals, the association provides guidance on excellent facilities for the treatment of urological diseases, accompanying patients in making the most suitable choice.
Protecting Rights
Palinuro actively participates in institutional and healthcare tables to advocate for patients' rights, promote research, access to care, prevention and early diagnosis.
Events, Conferences and Assemblies
Periodically, informative events, medical-scientific conferences and get-togethers are organized to strengthen the network among patients, physicians and family members.
A network that unites
Palinuro Association is part of national and international advocacy coalitions for the rights of urological patients, collaborating with entities such as Europa Uomo, World Bladder Cancer Patient Coalition (WBCPC) and FAVO - Italian Federation of Voluntary Associations in Oncology.
Julian's story
Giuliano, a 69-year-old entrepreneur, received in October 2022 a diagnosis of infiltrating urothelial carcinoma of the bladder, already advanced and with muscle complications. Despite continuous monitoring, the tumor had not been detected in time.
After the initial shock and a period of bewilderment, he relies on thePalinuro Association, which supports him and helps guide him toward more effective treatments. He starts with chemotherapy, but the tumor grows and spreads, making it inoperable. He then switches toimmunotherapy, which surprisingly yields positive results: the carcinoma shrinks until it almost disappears.
Julian decided to quit his job to devote himself to his health and rediscovered the value of affection, time and simple living. Today he continues treatment and checkups, but he feels "reborn" and shares his experience to give hope to those facing similar situations.
After the initial shock and a period of bewilderment, he relies on thePalinuro Association, which supports him and helps guide him toward more effective treatments. He starts with chemotherapy, but the tumor grows and spreads, making it inoperable. He then switches toimmunotherapy, which surprisingly yields positive results: the carcinoma shrinks until it almost disappears.
Julian decided to quit his job to devote himself to his health and rediscovered the value of affection, time and simple living. Today he continues treatment and checkups, but he feels "reborn" and shares his experience to give hope to those facing similar situations.
Giusy's story
Giusy accidentally discovers bladder cancer in 2023, initially mistaken for simple cystitis. After the diagnosis, she follows a course of chemo and radical cystectomy with neobladder, facing deep fears and a difficult adjustment to her new physical condition.
The support of thePalinuro Association, family and medical staff has been crucial in overcoming the difficulties, including psychological ones. Today Giusy has returned to work, travel and her passions, while living with new limitations and a different self-perception.
She doesn't feel like a survivor, but a woman who has climbed a huge obstacle and now knows she can move forward.
The support of thePalinuro Association, family and medical staff has been crucial in overcoming the difficulties, including psychological ones. Today Giusy has returned to work, travel and her passions, while living with new limitations and a different self-perception.
She doesn't feel like a survivor, but a woman who has climbed a huge obstacle and now knows she can move forward.
